jinian: (algae)
Feeling crummy due to a nasty eye infection. I've had a 5-minute telehealth visit and an antihistamine prescription that didn't help... and then not been able to get in touch with the medical team beyond a note saying my message was being forwarded to triage nurses and to go to urgent care/emergency if things got worse. Luckily, my eye has gotten better, but it seems like the doctors in my area are not only staying as isolated as possible but also getting very busy.

no direction but its own bright grace by Anonymous
Sarah (with no onscreen Labyrinth pals) finding magic in her own world and doing her best to save it.

An Unexpected Life by enchantedsleeper
Obviously I need to catch up on Questionable Content, as this AI friendship story was totally my jam.

The Unseen Connections by sandalwoodbox
Wonderful and so very Steerswoman.

https://pug-lord01.tumblr.com/post/613323621825429504
https://wildandwhirlingwords.tumblr.com/post/613368783317417984/guys-read-all-of-this-please-please-pl-guys
I'm still convinced this is an adorable piece of performance fic, but it's SO adorable and queer.

https://todaysveterinarynurse.com/articles/me-owwmanaging-chronic-feline-pain/
Comprehensive and well referenced article that finally gave me the maximum gabapentin dosage for cats. Ember is feeling much better now and remains well within dosage limits. :)

cacio e pepe by serephemeral
What if EVERYONE. :D

The Arc Towards the Sun by ViaLethe
Beautiful slow-burn Andromache/Hector.

https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(20)30566-3/fulltext
Original literature on how long virus is detected in patients after onset of COVID-19. Doesn't say what I wanted to know, which is how long virus is detected after symptoms are gone. Presumably the guidelines to stay isolated 72 hours after a fever came from somewhere, but it doesn't seem to have been here!
jinian: (fft ninja)
Last night, Cousin 4 was in town, so we went over for dinner. Found out at the last minute that WAY MORE PEOPLE were going to be there, which is always so great to be surprised by. At that house, everyone just jams into the dining room until they can't fit, and it gets really loud, so I retreated pretty quickly to another room. It's nice to live closer to family, I guess, but the ways that people have never understood me are much more obvious when I'm around them more often.

Eventually, I got drawn into a game, which was better. I will talk to humans! All I ask is that there not be ten people all talking at once! And a barky dog that people are aggravating! Please.

Playing a game that a very small cousin made up by himself was the best part of the evening. I was warned about his tendency to actually hurt you if his toy is fighting your toy, and I was not entirely safe even though we started with a board game. (Pencils are swords, and his pawn was an aggressive little thing.) But he was really creative about everything. He can't read yet, so answering the questions on the cards, which is how you normally move, was out. Instead he took the four pawns we weren't using and rubbed them in his hands until one fell out, and each of us was assigned two of their colors, so we got to move when our color fell out. Smart! And then of course we got into purely imaginative play, where the game board itself became a giant shark and the box was houses. (I was responsible for the timer being a cannon, though.)

On the way home, Mom got back into her "recommending things to the chronically ill person" mode. She claims not to be unhappy or disappointed with my introversion, but it's obviously not true -- she claimed I wasn't "my best self" because I wasn't up for full-on family game night (which is like 20 people including six children) less than 48 hours after my cross-country move. Fuck off with that. And I've told her that it's hurtful when people jump in with solutions. So when she mentioned acupressure, and I said I'd tried and it doesn't work any more because my sinuses have been inflamed FOR OVER A YEAR, she literally said "have you done it for long enough?"

How long is long enough to know something doesn't fucking work? If you start from the premise that it's going to work, then I should just sit here using my hands (which are arthritic btw, and this does hurt them) to apply pressure to my face all day every day, until something that isn't working decides to work. And clearly I should also spend all my time on every other thing that someone suggests. 100% effort times the number of suggestions, FOREVER, seems totally reasonable, especially when I'm debilitated, right?

At that point, I was just like, yep, guess I'm doing it wrong. I'm sure that's it. She eventually noticed that I was blowing her off and said "well, I haven't been dealing with this as long, I still have hope."

Really.

I said, "I am doing something, and it's working, it's just not working very fast. And I'm going to keep doing it, even if it involves drinking large amounts of Limonata." (Which she has teased me about before.) She hadn't realized that was a sinus management strategy, but jfc, I'm on a million decongestants and antihistamines, I'm dry as a bone all the time, which I need to not be or my sinuses will get worse, and even I get bored with THAT much water.

So I stood my ground, but it sucks that she didn't listen when we had this conversation before. Yes, it hurts when people jump in with suggestions all the time. You're telling me that you don't think I am trying hard enough. I know how much I can try, and I'm doing it. Just because you mean well doesn't mean you're not hurting chronically ill people with this behavior.

plans

Feb. 23rd, 2018 11:17 am
jinian: (worms' meat)
As I'm still not doing well (health-wise or trauma-wise) in the Boston area, I'm planning to move back to the Seattle area in a couple of months. Squeak and I are landing at my mom's place initially, and the long-term plan is to look for some inexpensive land in an appropriate biome and eventually build a house. The medium term remains undetermined; there might be a cheaper apartment than my current one to facilitate savings, or I might stay at Mom's for longer -- I am hardened to roommates now, after all, and there are fewer annoyances with Mom's housekeeping than with most, since she's the one who trained me.

The exact move date is not yet determined; I'm trying to stay a bit flexible for now, in case the person taking my room (also not yet determined) needs something in particular. I'll definitely be here throughout March, though, and my health is not so bad that I can't go out once in a while, so let me know if you want to see Black Panther again do something!
jinian: (c'est la vie)
I got done (well. basically done.) with my work for today in good order and decided that, rather than being completely lazy, I would go out to get the Thai food and milk tea boba that I was craving. Going past the park, kids were shouting and dogs wearing lighted collars were zooming around, and a huge, beautiful full moon was rising. I found out that I like the restaurant in person as well as I like it delivered -- I hadn't thought there was good pad see ew in this town, so of course it's right down the street -- and I was amused by the life-sized fake tarantulas still on the windows they seated me next to. I ate way too many noodles and read fanfic (setissima is amazing), then went by the comic store and fell prey to classic manga by women, a cute lesbian memoir, my own comics nostalgia (it's only been 15 years, comics, what are you doing), and the dollar rack. At home, there was a cat yelling at me, as is only right, and a package of pretty things from a friend.

I should probably actually finish my work for today, but that was really nice. I hope the weather gets cold enough to kill the ragweed soon so I can go out more without having to decontaminate immediately and itch anyway.

self-care

Jul. 3rd, 2017 11:06 pm
jinian: (red scarf)
And cat care. These are the themes of my working at home so far.

I have had a non-patchy tongue for the first time since I can remember. I'm eating my vegetables. The cats can yell for fresh food when they need it and will actually eat, so they're seeming much stronger. I have enough money to buy clothes I've been needing and enough energy to do the shopping with.

Not everything is perfect -- I need to sort out better ergonomics and more exercise, COBRA is an asshole, and my allergies are still present enough to have given me a mild sinus infection -- but this feels like progress and like recovery. I nearly went dancing this past weekend, which I haven't felt up for in ages.

And I have a paper on DNA barcoding of wild kiwifruit to read and edit next! (This morning I carefully edited a paper on hysterectomies for trans men to avoid calling the patients "woman" or "she"; they had only messed up a little and their language doesn't use pronouns, but it's important.) I'm learning how to edit to a specific standard, I'm building stamina and speed, it's effort, but this is fun.

I'm still sad and afraid and lonely, but I have something really good to do while I keep working on recovering.

update

Jul. 1st, 2016 12:14 am
I am nowhere near caught up on LJ/DW because of silly issues in transition between browsers and programs that I need to use for work (and quasi-work like making dragon game festivals happen). However, a lot is happening. The most important things are:

(1) Shiny new baby ball python.

just in case of phobias )

(2) Shiny new trauma diagnosis.

(Secondhand. Usually happens to therapists, so writings thereupon are not terribly useful for my situation.)

Therapist: So I think this is what's going on.

Me: But lots of people have much worse bad things actually happen to them directly, I should be fine.

Therapist: Well, now you sound like a trauma survivor.

Me: >.>


Dragon game festival is going swimmingly, though people are a little less awestruck by our entire book than I was hoping. Managed to goad a friend into writing fanfic of it already, though. :D
jinian: (lost sakura)
Feeling down and having trouble concentrating the last few days. Still being sick doesn't help, of course. Allergist visit May 20!

I had a good time Sunday going to Civil War and Martsa with Beth and Sandry, and I made things at pottery class on Saturday.

Felt discouraged this morning and then pointed out to myself that my past few years have gone:

- Developed severe undiagnosed abdominal pain.
- Finished a Ph.D.
- Worked on a demoralizing project for a year.
- Moved across the country.
- Got dumped in a weird retconning way that gave me trust issues.
- Developed progressively worse abdominal pain.
- Had trouble doing the project I actually wanted to do because of illness.
- Finally got a diagnosis and had a difficult surgery.
- Lost my dad.
- Broke up with someone I liked because the relationship just didn't make sense any more.
- Lost my cat.
- Developed nonstop sinus problems.
- Got dumped in a particularly scalding way by the person I really wanted to be with.

(And, as usual for the litany of woe, I have probably forgotten some shit.)

It is a goddamn triumph that I get out of bed in the morning. So there.
Turns out when you have had sinus misery for about five months, and then you're crying really hard about your loneliness and how bad the world has turned out to be, you can give yourself a nosebleed.

Do not recommend.

status

Apr. 20th, 2016 11:31 pm
jinian: (garden yukito)
I got shoes! Amazing shoes. They're not the "Elle Woods Astronaut shoes" (akycha got those) but they are sorcery. They also ate almost my entire state tax refund. Totally worth it. (Relatedly, I have a blister on my toe that might be infected. Ow.) It's vanishingly unlikely that I'll win Fluevogs for ten years, but what if I did. What if I did.

Squeak would like you all to know that she is a CAT who PURRS and she is RIGHT HERE.

Tomorrow is my pottery studio's show opening! I don't plan to buy anything, but I do want to go show my support. And Friday is chiptune Rocky Horror, about which I am still ridiculously excited.

Hilariously, I felt like I was about ready to stop seeing my therapist for the time being after our next appointment... until she emailed me a couple days ago saying she'd have to reschedule because her father had died. WELP. Maybe I am not feeling so hot after all. Still overall hopeful, productive, and enjoying the springtime, just a higher screaming-inside proportion than I really prefer.

In completely different news, I've been re-reading SailorPtah's lovely His Dark Materials/Welcome to Night Vale novels, and I spent some time thinking about Dust. There's a bit where Cecil is carving wooden replicas of people's daemons, and Carlos thinks, of course it makes Cecil happy to increase the number of Rusakov particles in the world. So I was contemplating intention and art. Dust accrues to artifacts, because consciousness went into making them as they are. But what I usually do with pottery is more of a dialogue or meditation with the material. My goal is usually not to have a piece of a particular size and shape, but rather developing my skill or moving in a direction and seeing what happens.

I undoubtedly come out with an artifact, but it's a different feeling. Then I wondered what Buddhist potters feel is the point of their craft. I feel like my experience is qualitatively different from making specific pottery to order, but maybe the idea of Dust is... less granular than that distinction. :D
jinian: (c'est la vie)
1. Sinus CT was pleasant, easy, and painless... except for the part where I decided I should make sure they were inflamed enough to see the problem so I didn't take anything or use the neti pot the night before. Ow. I don't even know if this was necessary. I regret everything. (Appointment to discuss with the ENT is Friday morning.)

2. My pottery teacher was amused by my quadratic formula t-shirt, just like I thought he would be. One begins to wonder if he would bring his deft care, people skills, and nerdy tinkering sensibility to non-pottery tasks. In bed.

3. My home internet is complete shit right now. Most frustrating. However, I finally managed to download Rebuild 3 from Steam, and probably I shouldn't be allowed to play it after 11pm because I didn't get the amount of sleep I wanted last night. I'm not scared of zed, I just want to keep rebuilding Snoqualmie.

4. Std.daff has emerged! Based on my photos from last year, we're running about three weeks earlier in terms of spring bulbs. I'm told that if you average last year's winter and this year's winter, you get a normal winter. Today it's beautiful and sunny and I wore a flannel overshirt on my walk to work, no coat at all. (Possibly some people wouldn't do this in the low 50s? I WOULD.)

5. Currently I'm wrestling with last year's medical bills for my stupid reimbursement thing. I will get hundreds of dollars back, provided I can actually get the bloody hospital to give me a corrected receipt, and of course when I call in either it rings and rings or there's no one available and I should send email they never reply to. Gah.
jinian: (c'est la vie)
In getting-over-my-ex news, I have:
  • Watched a bunch of Leverage by myself.

  • Made waffles (and done some other nontrivial cooking).

  • Gotten to where going to the grocery store merely makes me feel badgerish rather than panicky.

  • Finally thrown out the food that I had made to share with them when they decided to disappear instead.

  • [TMI] Made it all the way to orgasm without accidentally fantasizing about them and veering off into anti-erotic misery.[/TMI]


In general awesome doings, I have:
  • Gotten my bike into rideable shape.

  • Made an apple pie and won work's (very small) Pi Day contest with it.

  • Kept up decently on my job.

  • Successfully taken almost all of my absurd medication schedule on time.

  • Given excellent presents to people.

  • Polled for dragon game festival themes, including having to contact someone I didn't know to check that we weren't stepping on any toes.

  • Managed a fuckton of drama about dragon game festival themes, including whipping up a storyline that incorporated multiple suggestions.

  • Appeared to have an actual immune system -- still not all the way better but quickly recovered back to generally-crappy instead of getting a bad cold.

  • Designed and drawn lineart for an elaborate (representational-plus-celtic-knot) mythical snake design on a bowl, to be further painted in underglaze.

five things

Mar. 2nd, 2016 12:03 am
jinian: (bachelor's button bud)
1. Home from work today. Good thing I got a specialist appointment for Friday: this sinus thing is definitely swinging toward super shitty again.

2. Music mix for friend has consented to be cut down to three CDs' worth but no more. It is possible that I have some feelings of my own that I'm working through here.

3. Came up with a fun minigame for dragon game tomorrow. It's Applejack day of a My Little Pony-themed money-making event, so: profitbucking! Inspired by my teammate's amazing gif magic.

4. I really hate it when I feel too crappy to do things that are fun. I tried to play Necrodancer today but was not smart enough to make decisions in rhythm.

Actually, I also hate it when I feel too crappy to do things that aren't fun. Still badly need to shop for jeans and bras. Can I just stop feeling crappy in general, please?

5. At least the cats are happy, or they would be if there were at least one of me per cat who didn't want to do anything other than sit in the one position they find the most useful and gaze at them lovingly.
jinian: (grumpy)
I've had sinus stuff since at least the beginning of December. Two rounds of antibiotics, ups and downs (a norovirus is actually great for clearing your nasal passages), but still a problem. I'm on the verge of getting an ENT consult, but I realize that what with feeling terrible most of the time I haven't actually managed to do all of the palliative/slow-healing recommendations at the same time, and that that might be important.

I now have a 13-item checklist of what to do daily. I'll try this for a week and then get the probably useless referral. (Lots of stress and worry in having recurrent sinus ick for me; this is why I had to leave undergrad the first time and I'm very scared of it now.)

checklist for future use )

back home

Dec. 28th, 2015 11:12 pm
jinian: (lost sakura)
... back to crying and going round and round in my head. And now my stomach won't quit grumbling.

Maybe I'll take one of Dad's pain pills.
jinian: (no comment)
I'm behind on saying all the fun and horrible stuff that's been going on -- there's a lot of it -- but here is what's happened on my trip so far.

1. Woke up far too early before leaving Boston, and while cleaning out my bag discovered I had a razor blade in it by slicing the living fuck out of my right pinkie. This bled for over half an hour despite pressure, adequately distracting me from useful things like bringing along the key to the storage unit I have things in here in Seattle. I eventually stuck a cotton ball on it with a band-aid over the top, and it had stopped bleeding by my transfer in Dallas (after saturating the cotton ball and making a giant cotton-imbued scab). I ripped most of the cotton off and have been keeping it dry, since it seems to have sealed up all right. Probably could have used stitches, but timing prevented.

2. Too tired to do anything fun after arriving on Xmas eve. Came to Mom's and stared into space a lot, then went to sleep. The ongoing sinus thing was not helped by air travel.

3. Still exhausted on Christmas, but swapped gifts with Mom and cried some, then headed to my cousin's. Three out of five people living there had a stomach bug recently, but BCA swore no one had thrown up in two days and she'd disinfected the house thoroughly, so we got peer-pressured into going. (What did I come across the country for if not to see people, after all.) Had a pretty good time, would have liked to leave after about half the time we spent there as is usual for family gatherings.

4. Relaxing day on the 26th. Went to the hardware store to find paint chips for Mom's bedroom and bathroom now that she's moved upstairs into Dad's old space and planning to rent out the downstairs.

5. At 2:30am on the 27th, I started throwing up. At 4:00am on the 27th, Mom started throwing up. It went on for about 4 hours in both cases. I slept through as much of yesterday as I could, which also meant a good deal of knitting and watching Game of Thrones. Toward evening I managed some broth and saltines instead of just soda and water. (Exactly one person in attendance at Christmas did not get sick. The judgmental people looked with more favor upon those who'd decided not to come after that.) I'd intended to see people, but that was not happening.

6. The plan was for me to leave at 12:40am last night, with a transfer in Minneapolis. I was feeling awful enough that I rebooked a direct flight for this morning instead. I have now woken up far too early, of course, partly due to a very growly stomach. There is nothing in you, stomach, shut it. Feeling acceptable so far apart from that, though.

sick

Oct. 1st, 2015 09:16 am
jinian: (algae)
I am sick. Being sick is no fun. I rested yesterday, but now I feel worse. Must get the rent check downstairs today. Kinda too shaky and feverish to be doing that just at this moment. Nyquil, my old nemesis, let's do this.
jinian: (rarity hmm)
It turns out that, having bounced out of having been down since last year -- gigantic move, new difficult climate, unexpected breakup, worsening chronic pain, major surgery and recovery, death of a parent, heart attack of remaining parent, death of a pet, the thing is I am certain I am leaving things out -- I am having trouble forgiving myself for not being able to do things that I should totally have been able to do. Because now I can do them, so what was my problem?

(Boy, I really did not like it when my therapist forgave part of the cost for the appointment I missed because she figured I couldn't help it, either. I am supposed to be able to fix make do all the things, what is this doubting my capabilities?! Even when I don't, temporarily, actually have them.)

But right. I did not have the energy to do the work that needed to be done. There were weights on every part of me making everything much harder than it usually is.

The trick now is to figure out how to put my energy into the places it needs to go rather than skating along with the habits that used to be more adaptive and now are a bad plan.

update

Jun. 24th, 2015 11:03 pm
jinian: (c'est la vie)
Getting work done at work this week.

Good appointment with therapist Monday. After which I went somewhere I hadn't been before, got a Ms. Marvel trade and Squirrel Girl #4 and ate frozen yogurt, and eventually managed to find Good Vibrations. Treating myself and also being a quality person who does things in the world.

Hurt my neck as a direct result of GV visit and woke up with nasty headache. Unsure of cost-benefit here as both make strong cases.

Had an adventure with [personal profile] rushthatspeaks. After being confused by inferior maps and displeased with the hot soupy weather, we did find our rose-garden goal, and then there was a convenient and free train, and ice cream for dinner. Then showering. I remain very grateful for such an excellent partner and also for the central air at my apartment.

Getting real work done really, like, I did PCR today and ran it on a gel and all. Still working out some damnfool crap from my botched reappointment, but mostly doing well right now.

Spate of fun hectic planning on dragon game, unfortunately spurred by bad news of cool people leaving our subgroup. But I drew a trout with which I am pleased.

jinian: (bold bananas)
Provided a quick turnaround on an information request from our collaborator, even though it required some tinkering.

Joined the Association of Education and Research Greenhouse Curators as part of my long-term job agenda.

Worked on some tricky gene sequences for the gene tree I need to make.

Interviewed a therapist by phone and made an appointment for later this week.

Received a notice of termination of benefits when I got home, which would mean I don't currently have insurance. Sent grumpy email to HR asking whether I should expect to have continuous coverage despite the administrative lack-of-job fuckup or instead contact the nice COBRA people, since, see previous, I have an appointment this week for which I expect to use health insurance.

Successfully initiated a good text interaction with Wim. (This took two tries, but it worked the second time.)

i am mighty

Jun. 3rd, 2015 01:19 pm
jinian: (mighty pea)
Today I am feeling too crap to do the work I would like to do, so instead I have paid my medical bills (in the sense that they are now on a credit card anyway) and written to my confusing health insurance people about getting counseling. If that means I cry at work today, then SO BE IT, I am great and anyone with a problem can go fuck themselves.

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hey love, I'm an inconstant satellite

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